{"id":558,"date":"2022-07-06T15:38:07","date_gmt":"2022-07-06T15:38:07","guid":{"rendered":"https:\/\/oligofastx.com\/?page_id=558"},"modified":"2023-12-13T15:00:59","modified_gmt":"2023-12-13T15:00:59","slug":"enfermedades-raras","status":"publish","type":"page","link":"https:\/\/oligofastx.com\/es\/enfermedades-raras\/","title":{"rendered":"Enfermedades raras"},"content":{"rendered":"\n  <div class=\"banner has-hover has-parallax\" id=\"banner-1703083369\">\n          <div class=\"banner-inner fill\">\n        <div class=\"banner-bg fill\" data-parallax=\"-3\" data-parallax-container=\".banner\" data-parallax-background>\n            <div class=\"bg fill bg-fill \"><\/div>\n                        <div class=\"overlay\"><\/div>            \n                    <\/div>\n\t\t\n        <div class=\"banner-layers container\">\n            <div class=\"fill banner-link\"><\/div>            \n   <div id=\"text-box-344936592\" class=\"text-box banner-layer x50 md-x50 lg-x50 y80 md-y80 lg-y80 res-text\">\n                                <div class=\"text-box-content text dark\">\n              \n              <div class=\"text-inner text-center\">\n                  \n<h2 class=\"lead\">Enfermedades Raras<\/h2>\n              <\/div>\n           <\/div>\n                            \n<style>\n#text-box-344936592 {\n  width: 60%;\n}\n#text-box-344936592 .text-box-content {\n  font-size: 100%;\n}\n<\/style>\n    <\/div>\n \n        <\/div>\n      <\/div>\n\n            \n<style>\n#banner-1703083369 {\n  padding-top: 215px;\n}\n#banner-1703083369 .bg.bg-loaded {\n  background-image: url(https:\/\/oligofastx.com\/wp-content\/uploads\/2022\/07\/00guillian-barre.png);\n}\n#banner-1703083369 .overlay {\n  background-color: rgba(0,0,0,.5);\n}\n<\/style>\n  <\/div>\n\n\n<div class=\"row\"  id=\"row-480912596\">\n\n\t<div id=\"col-225541023\" class=\"col small-12 large-12\"  >\n\t\t\t\t<div class=\"col-inner\"  >\n\t\t\t\n\t\t\t\n<div class=\"row align-center\"  id=\"row-1373003501\">\n\n\t<div id=\"col-103157272\" class=\"col medium-11 small-12 large-11\"  >\n\t\t\t\t<div class=\"col-inner\"  >\n\t\t\t\n\t\t\t\n\t<div id=\"text-517811241\" class=\"text\">\n\t\t\n<h3 class=\"lead text-center\">Las denominadas enfermedades raras (EERR) son aquellas que afectan a un n\u00famero peque\u00f1o de personas en comparaci\u00f3n con la poblaci\u00f3n general y que, por su baja incidencia, plantean cuestiones espec\u00edficas tanto en su abordaje social y cl\u00ednico como en su investigaci\u00f3n<\/h3>\n\t\t\n<style>\n#text-517811241 {\n  color: rgb(136, 123, 78);\n}\n#text-517811241 > * {\n  color: rgb(136, 123, 78);\n}\n<\/style>\n\t<\/div>\n\t\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\n\t\n<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\n\t\n<\/div>\n<div class=\"row align-equal align-center\"  id=\"row-1058494150\">\n\n\t<div id=\"col-1903318798\" class=\"col medium-5 small-12 large-5\"  data-animate=\"fadeInLeft\">\n\t\t\t\t<div class=\"col-inner\"  >\n\t\t\t\n\t<div class=\"is-border\"\n\t\tstyle=\"border-color:rgb(136, 123, 78);border-radius:65px;border-width:5px 5px 0px 0px;margin:0px 0px 0px px;\">\n\t<\/div>\n\t\t\t\n\t<div id=\"text-946883532\" class=\"text\">\n\t\t\n<h2 class=\"lead text-center\">\u00bfQu\u00e9 son?<\/h2>\n\t\t\n<style>\n#text-946883532 {\n  color: rgb(136, 123, 78);\n}\n#text-946883532 > * {\n  color: rgb(136, 123, 78);\n}\n<\/style>\n\t<\/div>\n\t\n<p>En Europa, se considera que una enfermedad es rara cuando afecta a 1 persona de cada 2.000. Una de las caracter\u00edsticas epidemiol\u00f3gicas de estas enfermedades es que la mayor incidencia se presenta en la edad pedi\u00e1trica, dado que un gran n\u00famero de ellas se deben a causas gen\u00e9ticas y cong\u00e9nitas, mientras que su prevalencia es m\u00e1s alta en adultos, debido a una mortalidad infantil muy alta de algunas de ellas.\u00a0Su distribuci\u00f3n geogr\u00e1fica puede ser tambi\u00e9n muy variable.\u00a0\u00a0<\/p>\n\t\t<\/div>\n\t\t\t\t\n<style>\n#col-1903318798 > .col-inner {\n  padding: 30px 30px 30px 30px;\n}\n<\/style>\n\t<\/div>\n\n\t\n\n\t<div id=\"col-757850468\" class=\"col medium-1 small-12 large-1\"  >\n\t\t\t\t<div class=\"col-inner\"  >\n\t\t\t\n\t\t\t\n\t<div id=\"text-2971993072\" class=\"text\">\n\t\t\n<h1 style=\"text-align: center;\"><span style=\"font-size: 250%;\">\u2022<\/span><\/h1>\n\t\t\n<style>\n#text-2971993072 {\n  color: rgb(136, 123, 78);\n}\n#text-2971993072 > * {\n  color: rgb(136, 123, 78);\n}\n<\/style>\n\t<\/div>\n\t\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\n\t\n\n\t<div id=\"col-696227329\" class=\"col medium-5 small-12 large-5\"  data-animate=\"fadeInRight\">\n\t\t\t\t<div class=\"col-inner\"  >\n\t\t\t\n\t<div class=\"is-border\"\n\t\tstyle=\"border-color:rgb(136, 123, 78);border-radius:65px;border-width:0px 0px 5px 5px;margin:0px 0px 0px px;\">\n\t<\/div>\n\t\t\t\n\t<div id=\"text-1398748732\" class=\"text\">\n\t\t\n<h2 class=\"lead text-center\">Su importancia en los sistemas de salud<\/h2>\n\t\t\n<style>\n#text-1398748732 {\n  color: rgb(136, 123, 78);\n}\n#text-1398748732 > * {\n  color: rgb(136, 123, 78);\n}\n<\/style>\n\t<\/div>\n\t\n<p>Las enfermedades raras son una prioridad emergente de la salud p\u00fablica mundial. Dada su alta heterogeneidad y la necesidad de ofrecer una medicina individualizada dirigida a peque\u00f1os grupos de pacientes, se han convertido en un desaf\u00edo para los sistemas de salud y para la investigaci\u00f3n biofarmac\u00e9utica.<\/p>\n<p>De acuerdo a los datos epidemiol\u00f3gicos disponibles, \u00e9stas afectan a entre el 3,5% y el 5,9% de la poblaci\u00f3n mundial, lo que equivaldr\u00eda a unos 300 millones de personas en todo el mundo, cifra utilizada hasta ahora por <a href=\"https:\/\/www.rarediseasesinternational.org\/\">Rare Diseases International<\/a> y <a href=\"https:\/\/www.eurordis.org\">EURORDIS.<\/a><\/p>\n\t\t<\/div>\n\t\t\t\t\n<style>\n#col-696227329 > .col-inner {\n  padding: 30px 30px 30px 30px;\n}\n<\/style>\n\t<\/div>\n\n\t\n<\/div>\n\t<section class=\"section dark\" id=\"section_1769320377\">\n\t\t<div class=\"bg section-bg fill bg-fill  \" >\n\n\t\t\t\n\t\t\t<div class=\"section-bg-overlay absolute fill\"><\/div>\n\t\t\t\n\n\t\t<\/div>\n\n\t\t\n\n\t\t<div class=\"section-content relative\">\n\t\t\t\n\t<div id=\"gap-1746770481\" class=\"gap-element clearfix\" style=\"display:block; height:auto;\">\n\t\t\n<style>\n#gap-1746770481 {\n  padding-top: 60px;\n}\n<\/style>\n\t<\/div>\n\t\n<div class=\"row\"  id=\"row-1032629448\">\n\n\t<div id=\"col-667115497\" class=\"col medium-4 small-12 large-4\"  data-animate=\"fadeInLeft\">\n\t\t\t\t<div class=\"col-inner text-center\"  >\n\t\t\t\n\t<div class=\"is-border\"\n\t\tstyle=\"border-color:rgb(136, 123, 78);border-radius:25px;border-width:5px 5px 0px 0;\">\n\t<\/div>\n\t\t\t\n\t<div id=\"text-3116883113\" class=\"text\">\n\t\t\n<h2>Enfermedades<\/h2>\n<h2>Raras (EERR)<\/h2>\n\t\t\n<style>\n#text-3116883113 {\n  font-size: 1.25rem;\n  color: rgb(255, 255, 255);\n}\n#text-3116883113 > * {\n  color: rgb(255, 255, 255);\n}\n<\/style>\n\t<\/div>\n\t\n\t\t<\/div>\n\t\t\t\t\n<style>\n#col-667115497 > .col-inner {\n  padding: 5px 0px 0px 0px;\n  margin: 6px 13px 0px 2px;\n}\n<\/style>\n\t<\/div>\n\n\t\n\n\t<div id=\"col-515395072\" class=\"col medium-8 small-12 large-8\"  data-animate=\"fadeInUp\">\n\t\t\t\t<div class=\"col-inner\"  >\n\t\t\t\n\t\t\t\n\t<div id=\"text-2063470598\" class=\"text\">\n\t\t\n<p>Las enfermedades raras que aborda el Proyecto OLIGOFASTX son las siguientes:<\/p>\n\t\t\n<style>\n#text-2063470598 {\n  color: rgb(255, 255, 253);\n}\n#text-2063470598 > * {\n  color: rgb(255, 255, 253);\n}\n<\/style>\n\t<\/div>\n\t\n\t<div id=\"text-2879226592\" class=\"text\">\n\t\t\n<ul>\n<li><a href=\"https:\/\/oligofastx.com\/es\/sindrome-de-guillain-barre\/\">S\u00edndrome de Guillain-Barr\u00e9<\/a><\/li>\n<li><a href=\"https:\/\/oligofastx.com\/es\/retinosis-pigmentaria\/\">Retinosis Pigmentaria<\/a><\/li>\n<li><a href=\"https:\/\/oligofastx.com\/es\/amaurosis-congenita-de-leber\/\">Amaurosis Cong\u00e9nita de Leber<\/a><\/li>\n<li><a href=\"https:\/\/oligofastx.com\/es\/cancer-caquexia\/\">C\u00e1ncer Caquexia<\/a><\/li>\n<li><a href=\"https:\/\/oligofastx.com\/es\/sindrome-de-alstrom\/\">S\u00edndrome de Alstr\u00f6m<\/a><\/li>\n<li><a href=\"https:\/\/oligofastx.com\/es\/distrofia-corneal-endotelial-de-fuchs\/\">Distrofia corneal endotelial de Fuchs<\/a><\/li>\n<li><a href=\"https:\/\/oligofastx.com\/es\/cancer-anaplasico-de-tiroides\/\">C\u00e1ncer anapl\u00e1sico de tiroides<\/a><\/li>\n<\/ul>\n\t\t\n<style>\n#text-2879226592 {\n  color: rgb(255, 255, 255);\n}\n#text-2879226592 > * {\n  color: rgb(255, 255, 255);\n}\n<\/style>\n\t<\/div>\n\t\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\n\t\n<\/div>\n\t\t<\/div>\n\n\t\t\n<style>\n#section_1769320377 {\n  padding-top: 30px;\n  padding-bottom: 30px;\n}\n#section_1769320377 .section-bg-overlay {\n  background-color: rgba(0, 0, 0, 0.68);\n}\n#section_1769320377 .section-bg.bg-loaded {\n  background-image: url(https:\/\/oligofastx.com\/wp-content\/uploads\/2022\/07\/cancer-caquexia-1.jpg);\n}\n<\/style>\n\t<\/section>\n\t\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"page-blank.php","meta":{"_monsterinsights_skip_tracking":false,"footnotes":""},"class_list":["post-558","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/oligofastx.com\/es\/wp-json\/wp\/v2\/pages\/558","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/oligofastx.com\/es\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/oligofastx.com\/es\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/oligofastx.com\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/oligofastx.com\/es\/wp-json\/wp\/v2\/comments?post=558"}],"version-history":[{"count":19,"href":"https:\/\/oligofastx.com\/es\/wp-json\/wp\/v2\/pages\/558\/revisions"}],"predecessor-version":[{"id":3171,"href":"https:\/\/oligofastx.com\/es\/wp-json\/wp\/v2\/pages\/558\/revisions\/3171"}],"wp:attachment":[{"href":"https:\/\/oligofastx.com\/es\/wp-json\/wp\/v2\/media?parent=558"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}